Showing posts with label shave your head. Show all posts
Showing posts with label shave your head. Show all posts

Tuesday, February 25, 2014

What day is it? Donna Day!!


                                                               

It has been 3 years since I read Donna's Cancer Story. In that 3 years I have learned more than I ever want to know about childhood cancer. And by that I mean the things that someone on the outside rarely, if ever, know. The fear, pain, and anger that I can't even fathom. The daily minutiae of caring for a child with cancer. But the one thing that has stuck with me is the HOPE. The hope that Mary Tyler Mom keep alive, despite the fact that she lost her beautiful Donna to the evil that is cancer. Through her pain and sadness, this hope shines through. In her words, in her deeds, and in her daily life. Some days, that light might be dimmer than others, but it doesn't go out. THAT is strength folks. That is amazing.




            
  




This time last year, my Teenzilla was preparing to shave her head for the St. Baldrick's Foundation, which began in March, 2000 as the annual reinsurance industry’s St. Patrick’s Day party, held at Jim Brady’s pub in Manhattan. The goal of shaving 17 heads and raising $17,000 turns into 19 bald heads and $104,000 donated to fund the research of the Children’s Oncology Group. 


It was an emotional roller coaster, raising the money (over $1000!) and the event itself.... wow. At the time, Teenzilla was 14, a freshman in high school, and as passionate about what she was about to do as only a teenage girl can be! Mary Tyler Mom and Mary Tyler Son came from Chicago to cheer Teenzilla and her teammates on, and that too was an absolutely amazing gift- getting to meet the woman who's daughter had inspired my girl to shave off her pink hair in Donna's name
                                                         e

When they called her time (3:27) to come to the staging area, I went with her and the captain of our team, Danielle, to get in line. When it was time for me to walk away, I lost it. I started sobbing, hugged them both so tight, not able to put into words how proud I was of them. Not since each of my children made their entrance into the world have I felt so overcome with pride, and emotions. I seriously felt dizzy with all the feels. There are no words to describe it.

                                 

When the time came for her to climb into that barber chair, I was shaking, crying and laughing all at the same time. Then came the moment I will never forget.  A man told us that she was amazing, and how he had lost his young daughter in September and how proud HE was of our daughter for what she was doing. Again- the flood of emotions that came over me was literally staggering. I lost my mom to cancer, but I have no idea what it means to move to "Cancerville" as MTM says, and to lose a child. I call myself a warrior mom, dealing with autism, but these parents, and kids are true warriors. 

My baby girl rocked her bald head, and the kids and staff at the school were incredibly supportive. I am still in awe of what she did, such a beautiful, selfless act, it's simply amazing. And what a difference a year makes!                                                      
                                                        Photo: Wow!! In 3 weeks it will be a year since the St. Baldrick's shave!!

It's a year later, the hair is grown back,  and she still talks about her experience, and has said she wants to do it again- after graduation! 


In celebration of Donna Day 2014- I am asking YOU, dear Wino's, to help out. There are many ways for you to be a hero to kids and their families battling cancer. 

1) CLICK this link-Donna's Good Things  It will take you to the Donna's Good Things fundraising page. Donate $5 or $500- EVERY bit helpsSt. Baldrick’s Logo
St. Baldrick’s Logo


Donna's Good Things at Candlelite Chicago Logo                      

3) Buy one of these super cool shirts! I know that many of you share my like for superheroes and all things geektastic- Teenzilla and I both have one of these shirts, and they are very cool, and definitely attract attention- Marvel Super Heroes Save Lives 

4) Go to the St. Baldrick's Foundation website and read about their mission, their accomplishments and the creative ways they are funding research for pediatric cancer. CLICK this link- St Baldrick's



5) Find a shaving event near you and SHAVE YOUR HEAD!!!

Mary Tyler Mom's family has grown, and they adopted Mary Tyler Baby just last year. And even though Donna has been gone longer than she was here, her story and legacy live on in her mom, dad and two brothers.  Life does go on. 

 Remember MTM's mantra- Always, ALWAYS choose hope.  Hope will help you make it through.








    

                                                   

Tuesday, October 9, 2012

Would you shave your head for a great cause?

My girl!
What would you be willing to do to make money and a statement for a great cause? Would you be willing to shave your head? I know I wouldn't. But my Teenzilla is. My heart is so full and proud- I really can't describe it.

Last year we started reading Donna's Cancer Story.Sheila Quirke, AKA Mary Tyler Mom, wrote a heartbreaking serial blog about her beautiful daughter Donna, and her 31 months of treatment. I have never read anything more gut wrenching than this. I sobbed. I raged. I shared this beautiful girl and her beautiful family with everyone.

Donna
Teenzilla read Donna's story too- and like me she cried and said "Fuck Cancer. What bullshit. It's not fair."
Said with all the conviction and vehemence only a teenager can muster.

 Through Mary Tyler Mom, I learned of the St. Baldrick's Foundation. "On March 17, 2000, reinsurance executives John Bender, Tim Kenny and Enda McDonnell turned their industry's St. Patrick's Day party into a head-shaving event to benefit kids with cancer. Their 20 "shavee" recruits planned to raise "$17,000 on the 17th." Instead, they raised over $104,000!  Now this has turned into the world’s largest volunteer-driven fundraising program for childhood cancer research  and today the St. Baldrick's Foundation funds more in childhood cancer research grants than any organization except the U.S. government."

I watched as several of my friends made their way to Chicago last year, and prepared to shave their heads. I donated and cheered them on. I followed their blogs and their Facebook pages. And I shared all of this with Teenzilla.  She looked at me after seeing all the pictures of the newly bald, and said, "I want to do that".

I chuckled, and I said, yeah, right. She looked me straight in the eye and said- "I am serious mom. So many kids have to go through chemo and lose their hair and they don't have a choice. I want to do this. It's just hair. It will grow back."

I told her that I would support her 100% if she wanted to do this, but secretly I thought she would never do it. The next event was a year away- that was a lot of time to think about it. And being a fickle teen girl- I expected her to forget about it, and then change her mind.

Then a few days ago, my friend Danielle from Life With Penis People, who had talked about starting a team last year,  asked if Teenzilla was still interested- because she was starting a team here in Michigan. I asked Teenzilla and she said "Oh heck yeah I am interested!"   I asked "Are you sure?" And she said "Absolutely positive mom"

So we are starting the fundraising. The big day is March 16, 2013. Teenzilla's fundraising goal (a'la me) is $1000. She is a little worried about raising that much. I told her- "You are young, beautiful and an amazing kid. People will donate and you will raise $1000 and make a difference. and then you will be bald and I get to rub your head!"


Our captain, Danielle! Thank you for starting our team!
I am beyond proud of her. This is HER idea. I am so amazed by her. She is mature beyond her years and has the all consuming passion that is unique to young people.

And in 5 months she will be shaving her head in honor of all the kids going though the hell of chemo.

 Damn. I am in absolute awe.





Please consider donating to this wonderful cause. St. Baldrick's is  just an amazing organization. Following are links to Teenzilla's fundraising page, and our Team, Donna's Good Things. If you are in Michigan, consider joining us- as a shavee or a volunteer! Look for St. Baldrick's events in your town too!
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Teenzilla's fundraising page

Shave your head!

Team Donna's Good Things

Danielle Bare Team Captain

Teenzilla's Mom